By Chase Holmes, News Reporter
TRUSSVILLE — Trussville Witches Ride, Inc. announced their beneficiary for the 2023 Trussville Witches Ride on Tuesday, June 20.
This year, participants will be riding for Jamie Lee Jones, a Trussville resident born with Prader-Willi Syndrome.
“Prader-Willi Syndrome causes developmental delays, constant hunger, low metabolism, balance problems, and weak muscle tone,” says Lee’s mother, Karyn Jones in a press release issued by Trussville Witches Ride. “Even though we have been attending the exercise classes at the Trussville Senior Center, Lee is extremely weak and has trouble getting into our bathtub for showers, so we desperately need a step-in shower.”
Lee was born with Prader-Willi Syndrome which causes developmental delays, constant hunger, low metabolism, balance problems and weak muscle tone. Despite her disability, Lee has never let it stop her from enjoying her favorite activities. She plays basketball and softball with the Homewood Exceptional Foundation and enjoys word search, puzzles and coloring.
The Trussville Witches ride is looking forward to helping Lee and her family while also spreading awareness for her disability.
“This is my first ride as a board member, and it is truly an honor to have played a part in choosing Lee as this year’s beneficiary,” said Christy Johnston, Secretary of the Trussville Witches Ride Board. “I had never heard of Prader-Willi Syndrome before reading Lee’s nomination. My hope is that we can bless this sweet family while also spreading awareness for some of the challenges that Lee overcomes on a daily basis.”
Registration for this year’s ride will open in August. The exact date for this year’s ride has yet to be determined but Trussville Witches Ride has indicated more information will become available in July.
For more information about Lee and The Trussville Witches Ride, follow them on Facebook and Instagram.